Thread:61Storm/@comment-29989042-20180310010918/@comment-29989042-20180322180023

Watch out for that autocorrect!!! It has a mind of its own, and can change what you intended to say. I know this from experience...and embarrassment! 🤪 It can make me mad sometimes, too.

So jealous of your snow, but just like you, I’d rather have safe amounts, than amounts that cause damage and injuries. Hadn’t heard about the mudslides, but hope the cause little to no problems and that people stay safe.

Yes, I have fibromyalgia. It was diagnosed about 10 years before the narcolepsy, although I think I can trace my narcolepsy back to high school. It just took many years to be diagnosed. The average between onset and diagnosis is 10-12 years. Took me longer. My fibromyalgia was managed very well for several years, but when my narcolepsy worsened, it caused the fibromyalgia to worsen. The 2 together can be a viscous cycle for days at a time. Part of why I was gone so long in January-February was because of the effects of the two on my brain and body. I’m so sorry your fingers are hurting you so bad right now. Hopefully you have good medicine/therapy to minimize the pain and help heal. So sorry to hear about your falls, too. You are so right about the difference between falling now versus when we were younger. I have cataplexy with my narcolepsy. Cataplexy is sudden loss of muscle tone. When I first developed it, it was mostly upper body, my arms drop to my sides, if I’m holding something, I drop it, my shoulders slump forward, and my speech is slurred if I’m talking. It usually occurs in situations I’m nervous/anxious. About 2.5 years ago, I developed full-body cataplexy, where I fall to the ground. Unfortunately I can’t control or brace my fall either. My husband saw it the first time it happened, and it scared him to death. I was standing and talking to him in the kitchen when something frightened me. I dropped to my knees, then fell the rest of the way forward onto my face, never once moving my arms to break my fall. I knew it happened right away and could hear my hubby freaking out, but couldn’t answer him for about 20 seconds. After about 30 seconds, I could finally get up. Gave myself a broken nose and 2 black eyes! It’s happened a couple times since then, all of them from being scared or frightened unexpectedly. I’m so afraid of falling!

I hope last night was a good night’s sleep for you and that the pain in your hands is better than it was yesterday, my dear twin, and that tomorrow will be even better. Sending gentle hugs! 🤗💖🤗💖🤗💖🤗