Thread:ZinXO/@comment-28482541-20160819223820/@comment-29416435-20160821182931

I looked up spoon theory. I hadn't used that term but I do employ it but call it the Points System.

Today for example - a very good friend has asked if we could come to his race. The fact he asked tells me how important because he understands my situation and knows I will kill myself to be there - so to ask in his mind is asking a lot. Anyway, so that is at 3 this afternoon and is half my points for the day considering the drive as well. The other half is easily taken up with just normal daily take care of self so I have no more points for, let's say, doing dishes.

My doctor helped me tremendously on day when I was feeling like a failure for not doing "enough" daily. He said: "Think of it this way; your body's energy having to cope with this level if pain is the equivalent to running a marathon everyday. How many people do you think run a marathon and then come home to do laundry, dishes - hobby or two or go to the store? They don't. They take a shower and call it a well spent day".

I also use that to pat myseld onthe back when I have a good day or do something extra for myself or especially for those I love 🙂

I hopethat wasn't too personal ☺️